Resources

The ALS Association (ALSA)

The ALS Association (ALSA) is fighting to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

 
ALS Residence Initiative (ALSRI)

ALS Residence Initiative (ALSRI) The ALS Residence Initiative is committed to improving the quality of life for pALS with compassionate caregiving and state-of-the-art technology.

 
A Midwinter Night's Dream

A Midwinter Night's Dream – an annual charity fundraiser held by The Northport High School chapter of the National Honor Society that supports Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) research.

 
The Angel Fund

The Angel Fund, established in 1997 by Ginny Delvecchio, herself an ALS patient, is a non-profit organization dedicated to supporting ALS investigations at the Cecil B. Day Laboratory for Neuromuscular Research, internationally recognized for its ground-breaking work in the fight against this devastating illness. The Angel Fund accomplishes this mission through fund-raising events and campaigns; acting as a conduit to the Day Lab for funds raised by associated events, and through public awareness initiatives such as direct mail programs, media relations and their Web site.

 
Bright Side of the Road Foundation

Bright Side of the Road Foundation – was established to support scientific research targeted at finding a cure for ALS.

 
fALS Connect

The Familial ALS (fALS) Registry connects families with scientists engaged in familial ALS research. ALS that runs in the family is known as “familial ALS” (or “fALS” for short). The type of ALS that is not familial is often referred to as “sporadic ALS”. Familial ALS is very rare; only about 10% of all ALS cases are familial. A simple way to think about familial vs. sporadic ALS: if more than one member of your family has had ALS, then it is very likely that you belong to a fALS family. If only one person in your family has ever had ALS, then it is most likely that ALS does NOT run in your family. The fALS Connect Registry is a privately managed project and is distinct from the National ALS Registry that is maintained by the U.S. Centers for Disease Control and Prevention (CDC). fALS Connect is not meant to compete with the National ALS Registry, but rather to work alongside it. By collecting information about people affected with fALS and family members who do not have fALS, but may be at risk for developing fALS in the future, fALS Connect will enhance the purpose of the National ALS Registry.

 
Keri's Crusade for ALS

Keri's Crusade for ALS is dedicated to honoring the memory of Keri Brown Still, a loving wife, mother, daughter and friend, who lost her life to ALS in 2008 at age 29. This nonprofit organization presents a yearly conference to educate professional and non-professional caregivers in the care of Amyotrophic Lateral Sclerosis. The goal is to raise awareness through education and support of finding the cause of ALS. If we can find the cause... we'll find the cure!

 
The Kevin Turner Foundation

The Kevin Turner Foundation was founded in 2010 by Kevin Turner, a former NFL pro football player who was diagnosed with ALS in May 2010. The Foundation’s mission is to bring attention to ALS and the need for a cure, raise awareness about the seriousness of brain trauma in athletes at every level of competition and its possible connection to ALS, and to financially support efforts to study, treat, prevent and ultimately cure this disease.

 
medicare_65

Medicare Under 65 is a resource for information on eligibility requirements, disabilities, and Medicare plans for the under 65 population. We have poured over the Centers for Medicare and Medicaid Services (CMS) information so you don’t have to.

 
The National ALS Registry

 

The National ALS Registry site allows persons with ALS (PALS) the opportunity to enroll in the National ALS Registry. The goal of the National ALS Registry is to collect information to help scientists learn more about ALS.

 
The Northeast ALS Consortium (NEALS)

The Northeast ALS Consortium (NEALS) is an independent, non-profit consortium of clinical and scientific investigators who conduct ALS research at their affiliated institutions.  The mission of NEALS is to take advances in ALS research from the lab and translate them rapidly into new treatments for people with ALS.

 
Project A.L.S.

Project A.L.S. recruits the world’s best research scientists and clinicians to work together toward an understanding of and the first effective treatments for ALS (amyotrophic lateral sclerosis). Project A.L.S. has raised over $54 million for research in the areas of stem cells, disease pathways, drug screening, and genetics. 

 

UMASS ALS Champion Fund/></div> <div  _mce_tmp= UMASS ALS Champion Fund is a movement to drive awareness and funding for the ALS breakthroughs happening at UMass Medical School (UMMS) and in the laboratory of Robert H. Brown, Jr., DPhil, MD one of the world’s leading and most promising ALS researchers. The Champion Fund aims to help Dr. Brown and his colleagues pursue ALS research leads and breakthroughs right now that might otherwise take years to attract funding from traditional sources. As a result, this Fund will make researchers at UMMS better prepared to “seize the moment” when highly promising ALS discoveries are made.

 

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The Faces of ALS