Privacy Policy

This privacy statement applies to the ALS Therapy Alliance. We provide this notice to explain our online information practices. By visiting the ALS Therapy Alliance website at www.alstherapyalliance.org , you are accepting the practices described in this privacy notice. For easy and direct access, we provide a link to this statement from all pages on the site.

The use of the ALS Therapy Alliance (ATA) name in association with any activity not initiated or previously sanctioned by the ATA is prohibited without prior approval of the ATA Board of Directors.

Privacy Policy Statement

The ALS Therapy Alliance is committed to protecting the privacy of its users. Information gathered by the ALS Therapy Alliance is used to monitor the effectiveness of our site and respond to your questions and requests.

Information Collection
Our site uses Google Analytics, which collects information on how people found our site, how they explored it, and how we can enhance our visitor’s experience. With this information, we improve our website return on investment and increase conversions.

We may occasionally conduct voluntary surveys on this site. Personally identifiable information collected in these surveys will not be shared. Aggregate results may be shared for analysis by third parties. The aggregate data can not be used to identify individuals.

Donors
The ALS Therapy Alliance is the sole owner of, and the only organization that uses information collected on this site. We will not rent, share or exchange our donor list with other organizations under any circumstances. We respect the privacy of our financial supporters.

Data Security Statement

The security of your personal information is very important to us and we are committed to protecting the information we collect. ALSTherapyAlliance.org takes precautions by using 3rdparty secure sites such as PayPal and Amazon.com to process transactions. These sites collect information such as name, address, e-mail address, phone number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation for tax purposes.  

When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual or a family, we will use the name and address of that individual or family for acknowledgement purposes only.

Mailing List
The information we collect for our mailing list includes: name, address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, via e-mail or regular mail.  

Please contact us directly by regular mail if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided. To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or making corrections. Callers will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date, in order to verify their identity and protect the privacy of our donors and members of our mailing list. 

Links to Other Web Sites
The ALS Therapy Alliance Web site includes links to other sites. We are not responsible for the privacy and security practices of any other Web sites or the nature of the content contained therein.

Changes to This Policy

The ALS Therapy Alliance reserves the right to change this policy at any time. Our privacy policy will be kept up-to-date and clearly posted on our Web site at all times. In the event that we decide to alter this privacy policy, the changes will be added directly to this statement.

Financial Statements

Copies of our most recent audited financial statement are available by contacting This email address is being protected from spambots. You need JavaScript enabled to view it. .

Contact Us

If you have specific questions or concerns about our privacy policy, please contact us at the following address:  

ALS Therapy Alliance, Inc.
16 Oakland Avenue
Needham, MA 02492-3150 

You can also contact us via email at This email address is being protected from spambots. You need JavaScript enabled to view it.  or by phone at (603) 664-5005.  

Updated 01/21/11

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